May is Lyme disease awareness month, a fact I have been blissfully unaware of until this year. In the months since my diagnosis though I have learned a lot and been quite horrified by the stories I've heard that make my own journey look like child's play. Patients who have been told their seizures were… Continue reading My Lyme Rally Experience
"What is happening?" "I'm being a superhero." "Ok..." "There is a scientific study that shows that if you stand like this, in superhero pose, for just five minutes before a job interview or a big presentation or a really hard task you will not only feel more confident, you will perform measurably better." "Seriously?" "Seriously."… Continue reading New Chapter in Lyme Treatment
Before being diagnosed with Chronic Lyme disease I'll admit that I didn't know much, if anything, about it. What little I did know was that it was a tick borne illness, often presents with joint pain, and a classic sign was a bull eye rash. I had no idea that those symptoms aren't always present,… Continue reading Why Lyme Is Hard To Treat: Part One
If you don't get sick very often, you probably don't realize just how important it is to have a good doctor. In my case, I know exactly how important that is because I am living with chronic health problems and whoever is treating me pretty much has my quality of life in their hands. Specialists… Continue reading Doctor Searching is Never Simple
"We would know if you had Lyme disease." "Well do you have a skin rash?" "Chronic Lyme is something doctors say to take advantage of their patients." "If you had Lyme, you would have the antibodies and would be able to tell from your white count." These are all comments I've been met with when… Continue reading A Diagnosis!!!
Today I was thinking about just how much thinking I do all the time. I realized that I spend most of my time considering things that most people probably never give a second thought. I woke up today extra dizzy from low blood pressure caused by POTS (Postural Orthostatic Tachycardia Syndrome). I knew the best… Continue reading Inside My Head
On Thursday, July 27, I woke up alone for the last time in my hotel room and got myself prepped for another day of infusions. As much as I was dreading the drugged, sluggish, awful feeling of having so many medications pumped through my body, I was hopeful that they did seem to be helping… Continue reading Jefferson Adventure: Day 5-6